| Name der Gesellschaft: |
Asociación Española de Esclerosis Múltiple |
| Abkürzung: |
AEDEM |
| Anschrift: |
Calle Sangenjo, 36
28034
Madrid
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| Tel: |
(34) 91 448 1305 |
| Fax: |
(34) 91 448 1305 |
| Email: |
aedem@aedem.org |
| Website: |
click here |
| Gegründet: |
26 August 1984 |
| Präsident: |
Águeda Alonso Sánchez |
| Vorsitzende: |
Baltasar del Moral Majado |
| Sprache: |
Spanish |
| Vorsitzende/r des Ärztlichen Beirates: |
Dr Guillermo Izquierdo |
| Ländervertreter im Internationalen Gremium für Medizin und Wissenschaft: |
Dr Xavier Montalban
Dr Guillermo Izquierdo |
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Kontacts
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| Informationen: |
María Andrades Ruiz |
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Daten
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| Anzahl der Mitglieder insgesamt: |
9,000 |
| Geschätzte Anzahl der Menschen mit MS: |
45,000 |
| Anzahl der Menschen mit MS, die der Gesellschaft bekannt sind: |
7,000 |
| Mitarbeiter (Vollzeit): |
6 |
| Mitarbeiter (Teilzeit): |
39 |
| Regelmäßige ehrenamtliche Mitarbeiter: |
150 |
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Ziele der Gesellschaft:
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- Help all those affected by MS and similar diseases through strengthening autonomous, regional and local associations and coordinating the work carried out.
- Raise public and governmental awareness of MS and the specific needs of those affected.
- Provide information about the disease to patients and their families to improve their knowledge of the symptoms and possible treatments and the possible help and services available to them.
- Promote and facilitate the creation of rehabilitation centres, providing physiotherapy, speech therapy, psychology and occupational therapy, to improve the quality of life for those affected and their families.
- Instigate support systems to aid social integration for members.
- Promote ‘MS Days’ to inform and advise those affected and to make the respective authorities and society in general aware of the problems faced by those with MS.
- Promote training courses for MS professionals.
- Improve the welfare of people with MS and quantity of resources available for people with MS.
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