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Cuba - Corresponding Organisation
Multiple Sclerosis Cuba
| Name of Society: |
Esclerosis Múltiple Cuba |
| Acronym: |
EM Cuba |
| Address: |
Calle 223 N° 23604
Fontanar 19250
La Habana |
| Tel: |
(537) 645 1526 |
| Email: |
emcuba@infomed.sld.cu |
| Established: |
14 April 2003 |
| President: |
Margarita Ruiz |
| Chief Executive: |
María E. Moscoso |
| Language: |
Spanish, English |
| Chair of the National Medical Advisory Board: |
Reynaldo Mustelier |
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Contacts
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| Fundraising: |
Aliet Castillo |
| Communications: |
Cesar Rapetti (crapetti@infomed.sld.cu) |
| Services: |
Maria E. Fernandez |
| Information: |
Maria E. Fernandez |
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Data
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| Total number of members: |
710 |
| Estimated number of people with MS: |
2000-2500 |
| People with MS known to the society: |
745 |
| Full time staff: |
None |
| Part time staff: |
None |
| Regular volunteers: |
28 |
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Society Aims & Objectives:
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To contribute to the improvement of the quality of life of people affected by MS.
It aims to achieve its mission by:
- strengthening the physical, psychological and emotional capacity of people affected by MS
- providing relevant information to all people in Cuba affected by MS, including people with MS, their families, relevant healthcare professionals and the community
- providing information on disease pathology from trusted international sources
- obtaining and distributing medications, aids and devices
- collaborating with clinical trials for people with MS
- promoting collaboration with all public organisations necessary to ensure adequate healthcare and quality of life for people with MS
- supporting the provision of psychological advice and physiotherapy where required
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