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Pоссия - Член-корреспондент
The All-Russian Public Organisation of Disabled People with MS
| Name of Society: |
Общероссийская Общественная Организация Инвалидов – Больных Рассеянным Склерозом |
| Acronym: |
ОООИ-БРС (PwMS RPO) |
| Address: |
443090, Samara
Yuria Pavlova Street, 8
Office 4
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| Tel: |
(7) 846 951 3645 |
| Fax: |
(7) 846 951 3645 |
| Email: |
pzlobin@yahoo.com |
| Website: |
click here |
| Established: |
3 May 2001 |
| President: |
Yan Vlasov |
| Chief Executive: |
Alla Beltyukova |
| Language: |
Russian, English |
| Chair of the National Medical Advisory Board: |
Prof Aleksey Boiko |
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Contacts
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| Fundraising: |
Olga Makarenko |
| Communications: |
Pavel Zlobin |
| Information: |
Oleg Ipatov |
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Data
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| Total number of members: |
70,000 |
| Estimated number of people with MS: |
120,000-130,000 |
| People with MS known to the society: |
70,000 |
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Society Aims & Objectives:
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- to provide comprehensive help and support to disabled people affected by MS and other demyelinating diseases so that they may be fully integrated into society
- to protect the legal rights of those affected by demyelinating diseases
- to carry out activities promoting a healthy lifestyle and how to maintain and improve physical and emotional health and well-being
- to strengthen the role of the family in the lives of people with demyelinating diseases and in the organisation
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