| Name of Society: |
Asociación Española de Esclerosis Múltiple |
| Acronym: |
AEDEM |
| Address: |
Calle Sangenjo, 36
28034
Madrid
|
| Tel: |
(34) 91 448 1305 |
| Fax: |
(34) 91 448 1305 |
| Email: |
aedem@aedem.org |
| Website: |
click here |
| Established: |
26 August 1984 |
| President: |
Águeda Alonso Sánchez |
| Chief Executive: |
Baltasar del Moral Majado |
| Language: |
Spanish |
| Chair of the National Medical Advisory Board: |
Dr Guillermo Izquierdo |
| Country representatives on International Medical and Scientific Board: |
Dr Xavier Montalban
Dr Guillermo Izquierdo |
| |
Contacts
|
| |
| Information: |
María Andrades Ruiz |
| |
Data
|
| |
| Total number of members: |
9,000 |
| Estimated number of people with MS: |
45,000 |
| People with MS known to the society: |
7,000 |
| Full time staff: |
6 |
| Part time staff: |
39 |
| Regular volunteers: |
150 |
| |
Society Aims & Objectives:
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- Help all those affected by MS and similar diseases through strengthening autonomous, regional and local associations and coordinating the work carried out.
- Raise public and governmental awareness of MS and the specific needs of those affected.
- Provide information about the disease to patients and their families to improve their knowledge of the symptoms and possible treatments and the possible help and services available to them.
- Promote and facilitate the creation of rehabilitation centres, providing physiotherapy, speech therapy, psychology and occupational therapy, to improve the quality of life for those affected and their families.
- Instigate support systems to aid social integration for members.
- Promote ‘MS Days’ to inform and advise those affected and to make the respective authorities and society in general aware of the problems faced by those with MS.
- Promote training courses for MS professionals.
- Improve the welfare of people with MS and quantity of resources available for people with MS.
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