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Hungary: 3rd Global Patients’ Congress on Patient-Centred Healthcare

Peer Baneke, MSIF CEO, attended the 3rd Global Patients’ Congress on Patient-Centred Healthcare, organised by the International Alliance of Patients’ Organisations (IAPO), held in Budapest. The conference was an excellent opportunity to liaise with other global health networks, key World Health Organization (WHO) officials and to learn about best practice in advocacy, capacity building and relations with pharmaceutical companies.

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Name: Caitlin Kernaghan
Country: Canada
Age: 11
Year of diagnosis: 2005

"I tell my story to other people because I HOPE they would like to donate for research so that we can find a cure and that no other kids or adults will have to spend their whole life with MS."

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Campath 1-H treatment in patients with aggressive relapsing remitting multiple sclerosis.

This open label study of Campath-1-H showed that it is very effective at preventing relapses in the small minority of patients with relapsing-remitting MS who have early aggressive disease. However there was a higher risk of side effects than with conventional treatments.

authors: Hirst CL, Pace A, Pickersgill TP, Jones R, McLean BN, Zajicek JP, Scolding NJ, Robertson NP.

source: J Neurol. 2008 Feb 20 [Epub ahead of print]

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Pregnancy, delivery and birth outcome in different stages of maternal multiple sclerosis.

Pregnancy, delivery and birth do not affect long-term prognosis in women with MS. This retrospective study looked back at birth outcomes, compared to when the diagnosis of MS was made. They found that having a baby after MS was diagnosed was associated with lower birth weights, but that did not have any negative effects on the babies, in terms of numbers of complications or interventions.

authors: Dahl J, Myhr KM, Daltveit AK, Gilhus NE.

source: J Neurol. 2008 Feb 19 [Epub ahead of print]

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Environmental factors and multiple sclerosis

The author reviews what is known about interactions between genes and environment in causing MS. He discusses recent theories concerning a possible role of sunlight exposure and diet.

authors: Ebers GC

source: Lancet Neurol. 2008 Mar;7(3):268-77.

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A three-year, multi-parametric MRI study in patients at presentation with CIS.

This large multi-centre study looked to see if advanced MRI techniques were able to predict which patients with clinical isolated neurological syndromes would go on to develop MS. Whilst the techniques were able to detect more subtle abnormalities than conventional MRI, they were not able to predict subsequent MS.

authors: Rocca MA, Agosta F, Sormani MP, Fernando K, Tintorè M, Korteweg T, Tortorella P, Miller DH, Thompson A, Rovira A, Montalban X, Polman C, Barkhof F, Filippi M.

source: J Neurol. 2008 Feb 18 [Epub ahead of print]

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The therapeutic plasticity of neural stem/precursor cells in multiple sclerosis.

The authors review current thinking about the role of adult neural stem cells in MS. They emphasise the importance of achieving a better understanding of how these cells, which are found in healthy brains as well as people with MS, function differently in health and disease.

authors: Pluchino S, Martino G.

source: J Neurol Sci. 2008 Feb 15;265(1-2):105-10. Epub 2007 Aug 17.

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Long-term benefits of exercising on quality of life and fatigue in multiple sclerosis patients with mild disability: a pilot study.

This study found that exercise is beneficial for people with MS, improving fatigue and quality of life scores, as well as improving exercise capacity. The benefits were still evident 3 months after the formal exercise programme had finished.

authors: McCullagh R, Fitzgerald AP, Murphy RP, Cooke G.

source: Clin Rehabil. 2008 Mar;22(3):206-14.

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India: Medical Seminar report

The Multiple Sclerosis Society of India (MSSI) held a medical seminar on 13 February at the Hall of Culture, Nehru Centre, Worli.

Chief Guest Dr. N. H. Wadia, a neurologist who has constantly supported MSSI since its inception in 1985 began the seminar with the ceremonial lighting of the lamp, aided by all of the speakers and sponsors.

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