Multiple Sclerosis International Federation


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Making Connections

 

MSIF News

Summaries of new MSIF activities, events, projects, programmes, resources, publications and more.
MS in focus: Spasticity survey

Our next issue of MS in focus will be on MS and spasticity and we have created a survey for people with MS who experience spasticity.

Results and experiences will be collated and written up for MS in Focus, due out Summer 2008.

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Profile of the Month

Summaries of news, views and achievements from people with MS around the world.

Profile of the Month : June 2008

May 2008 Profile of the Month
Country: Indonesia
Age: 36
Occupation: Writer, Tenant Relations Officer
Type of MS: Relapsing–remitting MS
Year of Diagnosis: 2001

"Help me with empathy, not sympathy"1

English Italiano Deutsche Espanol Francais Русско

   
 

Research News

Summaries of all the latest research findings on MS selected by a team based at the Institute of Neurology, London.
Regional Grey Matter Atrophy in Clinically Isolated Syndromes at Presentation.

The authors investigated whether detectable loss of tissue was present in people with only one attack suggestive of MS. They found subtle evidence of this in some of the deep grey matter structures of the brain. There were a few links with clinical symptoms.

authors: Henry RG, Shieh M, Okuda DT, Evangelista A, Gorno-Tempini ML, Pelletier D.

source: J Neurol Neurosurg Psychiatry. 2008 May 9 [Epub ahead of print]

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Long term clinical relevance of criteria for designating Multiple Sclerosis as benign after ten years of disease.

In this study the authors followed a large group of people with MS for more than 20 years to assess the evolution of the disease particularly focusing on those with benign MS. 26 years after onset 11% of people had minimal disability suggestive of benign MS and this was associated with female sex, younger age of onset and absence of motor symptoms at presentation.

authors: Costelloe L, Thompson A, Walsh C, Tubridy N, Hutchinson M.

source: J Neurol Neurosurg Psychiatry. 2008 May 13 [Epub ahead of print]

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Cognitive and psychosocial features of childhood and juvenile MS.

The authors assessed the cognitive and psychosocial abilities of children and adolescents with MS. They found that more than half of these people had difficulties in school and everyday activities. The authors concluded therefore that this is an area of critical importance to focus on to help them to manage better.

authors: Amato MP, Goretti B, Ghezzi A, Lori S, Zipoli V, Portaccio E, Moiola L, Falautano M, De Caro MF, Lopez M, Patti F, Vecchio R, Pozzilli C, Bianchi V, Roscio M, Comi G, Trojano M; Multiple Sclerosis Study Group of the Italian Neurological Society. Amato MP, Goretti B, Zipoli V, Portaccio E, Centorrino S, Contri V, Lori S, Falcini M, Comi G, Moiola L, Falautano M, Trojano M, De Caro MF, Lopez M, Patti F, Vecchio R, Gallo P, Grossi P, Bertolotto A, Giampaolo S, Pozzilli C, Bianchi V, Manca I, Masia C, Bergamaschi R, Veggiotti P, Ghezzi A, Roscio M.

source: Neurology. 2008 May 13;70(20):1891-7.

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From fish to man: understanding endogenous remyelination in central nervous system demyelinating diseases.

This paper gives an overview of the remyelinating process comparing different species, including humans. They focus on the fact that fish are more efficient at repairing some parts of their central nervous system than people and what we can learn from this.

authors: Dubois-Dalcq M, Williams A, Stadelmann C, Stankoff B, Zalc B, Lubetzki C.

source: Brain. 2008 May 12 [Epub ahead of print]

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Interferon-{beta} increases BAFF levels in multiple sclerosis: implications for B cell autoimmunity.

The authors investigated the role of Interferon-beta treatment in regulating B cells, which are involved in the immune system. They found that Interferon-beta may increase B cells survival and suggest that this could partly explain differences in the response to treatment in different people.

authors: Krumbholz M, Faber H, Steinmeyer F, Hoffmann LA, Kümpfel T, Pellkofer H, Derfuss T, Ionescu C, Starck M, Hafner C, Hohlfeld R, Meinl E.

source: Brain. 2008 May 12 [Epub ahead of print]

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MS News

Summaries of MS news from websites around the world.
UK MS Society article on a decade in the ‘life’ of MS available now

Alan Thompson, Director of the Institute of Neurology in London and Chairman of MSIF’s International Medical and Scientific Board (IMSB), has written an article for the UK MS Society, looking at changes in MS, including understanding of the disease, treatment strategies and advances in MS research over the past 10 years.

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Plan to promote pan-European standards in MS care

In Lubljana on May 7, neurologists, policy makers, and patients' groups came together for a roundtable discussion organised by the European Multiple Sclerosis Platform (EMSP) concerning pan-European inequalities in access to treatments for people with MS. The results of the pan-European MS Barometer study were presented and discussed among high level representatives from the EU institutions, Slovenian government and the medical profession.

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Multiple Sclerosis International Federation
3rd Floor Skyline House, 200 Union Street, SE1 0LX
Tel: +44 (0) 20 7620 1911
Fax: +44 (0) 20 7620 1922
Registered Charity: 1105321
Email: info@msif.org

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