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New MSIF members & updates from MS societies in Chile, Ghana and Saudi Arabia

source: MSIF

With 2010 fast approaching, we are looking forward to continuing to strengthen our membership base and reach out to MS organisations in countries and regions where it are currently under-represented.

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Profile of the Month : January 2010

Aida Alić

Country: Bosnia, living in Germany
Age: 32
Type of MS: Relapsing-remitting
Year of Diagnosis: 2000


"It was difficult to battle against people’s ignorance about MS, people said "well, if she has problems with her legs, she can work sitting down," and "I’ve heard MS is infectious."

Deutsch English French Italiano Русский

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A consensus protocol for the standardization of cerebrospinal fluid collection and biobanking

MS is an inflammatory-demyelinating disease of the central nervous system, where the study of cerebrospinal fluid (CSF) can be of great help in the diagnosis of the disease and may be crucial for research studies. In this paper, the authors describe a consensus protocol on recommendations for CSF collection procedures obtaining high-quality clinical and paraclinical data, to be able to establish large banks of reliable and well-defined samples in the future.

authors: Teunissen CE, Petzold A, Bennett JL, Berven FS, Brundin L, Comabella M, Franciotta D, Frederiksen JL, Fleming JO, Furlan R, Hintzen RQ, Hughes SG, Johnson MH, Krasulova E, Kuhle J, Magnone MC, Rajda C, Rejdak K, Schmidt HK, van Pesch V, Waubant E, Wolf C, Giovannoni G, Hemmer B, Tumani H, Deisenhammer F

source: Neurology. 2009 Dec 1;73(22):1914-22

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Magnetic resonance evidence of cerebellar cortical pathology in multiple sclerosis

MS is an inflammatory-demyelinating disease of the central nervous system and studies suggest that the cerebellar cortex is a major site of demyelination. In this study, the authors investigated the involvement of the cerebellar cortex in MS and found that it is severely affected at an early stage in people with MS. Also, they suggest that monitoring of both volume and lesions in the cerebellar cortex may be of great help in understanding the mechanisms underlying disease progression.

authors: Calabrese M, Mattisi I, Favaretto A, Rinaldi F, Atzori M, Bernardi V, Barachino L, Romualdi C, Rinaldi L, Perini P, Gallo P

source: J Neurol Neurosurg Psychiatry. 2009 Dec 3

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Cervical cord functional MRI changes in relapse-onset MS patients

In MS, conventional MRI techniques are not always sufficient to differentiate between people with a mild or severe clinical course. In this study, the authors found that functional MRI of the spinal cord may be helpful, not only in differentiating between controls and people with MS, but also in detecting people with a more severe disease course. People with a higher level of disability seemed to have higher activations in the functional MRI scan, revealing underlying pathological changes that maybe associated with the accrual of disability in MS.

authors: Valsasina P, Agosta F, Absinta M, Sala S, Caputo D, Filippi M

source: J Neurol Neurosurg Psychiatry. 2009 Dec 3

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Fatigue and quality of life in pediatric multiple sclerosis

MS generally affects young adults but sometimes children can also be affected. In this study carried out on 51 children with MS, the authors specifically examined the factors related to fatigue and quality of life in this population. They conclude that fatigue and poorer quality of life seem to be related to overall physical disability and that they are of great concern in paediatric MS.

authors: Macallister WS, Christodoulou C, Troxell R, Milazzo M, Block P, Preston TE, Bender HA, Belman A, Krupp LB

source: Mult Scler. 2009 Nov 13

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MS Society of Portugal - celebrating 25 years

source: MS Society of Portugal

The MS Society of Portugal, Sociedade Portuguesa de Esclerose Múltipla (SPEM), held a national conference and exhibition on 5 December 2009, at Lisbon University, to celebrate their 25th anniversary.

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Radio documentary tackles taboo of disability and sexuality

source: MS Australia

Australian John Blades, who has MS, has produced a radio documentary that examines disability and sexuality.

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UK MS Society information achieves new quality standard

source: UK MS Society

The UK MS Society has been recognised as a provider of information that meets strict new quality criteria laid out by the UK Department of Health.

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