Multiple Sclerosis International Federation 2 June 2009


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Making Connections

 

MSIF News

Summaries of new MSIF activities, events, projects, programmes, resources, publications and more.
First World MS Day succeeds in raising global MS awareness on 27 May 2009

On the first World MS Day MSIF launched a global campaign film in ten languages and more than 220 events and activities took place in 67 countries.

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MS in focus online survey – take part now!

This Survey is now closed

In case you missed it previously, please help inform the next edition of our biannual magazine, MS in focus, by taking part in our survey about the disease courses (types) of MS.

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Profile of the Month

Summaries of news, views and achievements from people with MS around the world.
Lori Schneider

Profile of the Month : January 2010

Lori Schneider

Country: USA
Age: 52
Type of MS: rapidly progressing
Year of Diagnosis: 1999

"It was an amazing feeling to go step by step by step up Mount Everest with the World MS Day flag in my pack. Each step was hard and I had to concentrate on every aspect, and I had to really convince myself to keep going. It gave me a whole new feeling for people with MS who may have a hard time walking across a room. My difficulty on the mountain was short-lived, but I realised that some people with MS experience this level of difficulty with every step they take. I encourage them not to give up hope and to keep following their dreams!"


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Research News

Summaries of all the latest research findings on MS selected by a team based at the Institute of Neurology, London.
Use of neuromuscular electrostimulation in the treatment of dysphagia in patients with multiple sclerosis

Swallowing problems are sometimes present in people with MS and they can cause other further complications if the situation is not addressed properly. In this study the authors aimed to investigate the beneficial effects of neuromuscular stimulation as a treatment for swallowing dysfunction. Beneficial effects were observed, suggesting that this could be considered as a treatment for swallowing problems in MS.

authors: Bogaardt H, van Dam D, Wever NM, Bruggeman CE, Koops J, Fokkens WJ

source: Ann Otol Rhinol Laryngol. 2009 Apr;118(4):241-6

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Randomized Clinical Trial of Balance-Based Torso Weighting for Improving Upright Mobility in People With Multiple Sclerosis

Balance problems can affect people with MS. In previous studies and in clinical practice it has been shown that the mobility and postural control in people with MS with balance problems could be improved by placing small amounts of weight on the torso. In this study the authors found beneficial effects of the treatment and they suggested that this would be a useful tool to improve balance problems in people with MS.

authors: Widener GL, Allen DD, Gibson-Horn C

source: Neurorehabil Neural Repair. 2009 May 26. [Epub ahead of print]

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MRI measures show significant cerebellar gray matter volume loss in multiple sclerosis and are associated with cerebellar dysfunction

In people with MS, some degree of loss of brain volume can sometimes be seen and it has been suggested that the loss of brain volume could be related to disability. In this study the authors aimed to investigate the presence of volume loss specifically in the cerebellum, a part of the brain especially involved in coordination skills, and its relationship to specific symptoms denoting impaired coordination. They found that loss of cerebellum tissue was clinically relevant, especially when this loss of volume was affecting the grey matter.

authors: Anderson V, Fisniku L, Altmann D, Thompson A, Miller D

source: Mult Scler. 2009 May 22 [Epub ahead of print]

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Fatigued patients with multiple sclerosis have impaired central muscle activation

Fatigue can be a major problem in people with MS. Its cause and mechanisms are still unknown. In this study the authors aimed to investigate whether this fatigue could be caused by a dysfunction in some of the parts of the central nervous system in charge of sending the signal for the muscles being able to move. They finally concluded that some degree of this specific part of the central nervous system could be involved in fatigue in MS.

authors: Andreasen A, Jakobsen J, Petersen T, Andersen H

source: Mult Scler. 2009 May 22

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MS News

Summaries of MS news from websites around the world.
Request for Proposals: novel therapeutic approaches to prevent, treat or reverse nervous system damage in MS

source: US National MS Society

Fast Forward LLC, a subsidiary of the US National MS Society, announces the 2009 Request for Proposals (RFP) under the auspices of a collaboration agreement between Fast Forward and EMD Serono, Inc.

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MS Societies in UK and Australia provide international research opportunity

source: UK MS Society

Worldwide collaborative ties among researchers investigating MS have been strengthened thanks to the introduction of the first UK and Australian Fellowship Exchange programme.

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Positive clinical trial results take centre stage at American Academy of Neurology Meeting

source: US National MS Society

More than 11,000 medical professionals gathered in Seattle recently for the 2009 annual meeting of the American Academy of Neurology.

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Detecting nervous system repair in MS: international workshop findings published

source: US National MS Society

How to detect nervous system protection and repair in people with MS was the theme of a workshop convened in Amsterdam by the US National MS Society’s International Advisory Committee on Clinical Trials.

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Lift off! New UK website for kids and teens affected by MS

source: UK MS Society

The UK MS Society has launched a new website dedicated to children and teenagers affected by MS.

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Multiple Sclerosis International Federation
3rd Floor Skyline House, 200 Union Street, SE1 0LX
Tel: +44 (0) 20 7620 1911
Fax: +44 (0) 20 7620 1922
Registered Charity: 1105321
Email: info@msif.org

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