Responses to an online survey on the MSIF website (www.msif.org) have revealed what some of our online readers think about sexuality and MS. Three hundred and sixty-six people with MS responded, of which 87 per cent currently have a sexual partner.

This is what we learned:

Impact of MS on the relationship
The results show that MS, or specific issues related to MS, have a significant influence on relationships. The box provides details on these MS-related issues. Fatigue, loss of libido and altered sensations were the most commonly reported factors influencing relationships.

Changes in lifestyle/way of thinking Over half of the respondents have made changes to their lifestyle or their way of thinking to maintain or enhance intimacy and sexuality. The study confirms that sexual difficulties are crucial in determining the way a person feels about him or herself as a man or woman, with almost two-thirds of respondents reporting that sexual issues have an impact on their view of themselves.

Communication

Two-thirds of respondents experienced difficulty in communicating with others (either a partner, healthcare professionals or others) on MS-related sexual difficulties.

The survey revealed that fewer than a third of the respondents have benefited from counselling, advice and therapy, and almost two-thirds have had a negative experience with treatment for specific problems.

The results of the study confirm that for people with MS, disease-related issues, such as symptoms, have a relevant impact on relationships. Intimate problems are common and open communication is crucial to addressing sexuality and intimacy concerns, although not many people seek professional help or benefit from treatment for specific problems.