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  Your questions answered
MS in focus Issue 7 - 2006

Readers of MS in focus ask questions to the Editor, Michele Messmer Uccelli.

Q. My neurologist suggested that I be evaluated for an exercise programme that I can do at home. Wouldn’t a more intensive, inpatient rehabilitation programme be more effective?

A. Studies have found some benefits for both inpatient and out-patient rehabilitation approaches.
The most important aspect to keep in mind is that the frequency, intensity, and setting of a rehabilitation programme must be based on individual needs. A comprehensive evaluation prior to beginning any rehabilitation programme will help to determine what is most appropriate for you.

Q. If people with MS experience extreme fatigue why would exercise be helpful? Wouldn’t it just worsen the fatigue?

A. Exercise can improve strength, stamina and cardiovascular fitness, as well as maintain a healthy weight. If practised following some basic rules, these benefits can be achieved while avoiding the negative effects of MS fatigue. It is always important and helpful to consult a physiotherapist to learn what types of exercise are appropriate for one’s capability and level of functioning. Avoiding exercising in excessively warm places, taking breaks and drinking fluids before, during and after exercise can all be helpful strategies in managing fatigue while exercising.

Q. I can walk without help for short distances, although I gradually become unsteady if I need to walk for an extended period of time. In that case I hold on to whoever is with me for support. My neurologist wants to refer me to an occupational therapist for an evaluation of my walking. I’m afraid that the therapist will tell me I need a stick or even worse. I can’t help feeling that it would be better if I kept on for as long as possible without an aid. It’s like once you start with a stick a wheelchair is just around the corner. Plus, a stick is for the elderly and I’m only 35. Should I hold out longer or give in?

A. Many people with MS may feel like you do, that accepting a technical aid is a form of “giving in” to the disease. It doesn’t help that our society values health and fitness and that technical aids such as sticks, braces and wheelchairs are often seen as “symbols” of disability. Technical aids, are tools for maintaining independence that can permit a person with MS to overcome daily difficulties and to better manage MS symptoms, such as fatigue. In short, technical aids can help you to participate more easily in all of the activities that you enjoy and that make up your life.

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