| Nombre de la asociación: |
Sociedade Portuguesa de Esclerose Múltipla |
| Acrónimo: |
SPEM |
| Dirección: |
Rua Zofimo Pedroso 66
1950-291
Lisboa |
| Tel: |
(351) 21 865 04 80 |
| Fax: |
(351) 21 865 04 89 |
| Email: |
spem@spem.org |
| Página web: |
click here |
| Creada en: |
8 December 1984 |
| Presidente: |
Manuela Martins |
| Director Ejecutivo: |
Jorge da Silva |
| Idioma: |
Portuguese |
| Representante en el Comité Internacional de Personas con EM: |
Ana Nina |
| Presidente del Consejo Asesor Médico Nacional: |
Dr António Magalhaes |
| Representantes por países en el Consejo Internacional Científico-médico: |
Dr Jose Grilo
Dr Livia de Sousa |
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Contactos
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| Recaudación de fondos: |
Manuel Gonçalves |
| Comunicaciones: |
Madalena d'Almeida |
| Servicios: |
Maria José Protásio |
| Información: |
António Amaro de Matos |
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Datos
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| Número total de miembros: |
1,400 |
| Número aproximado de personas que padecen EM: |
5,000 |
| Número de personas con EM de las que tiene conocimiento la asociación: |
920 |
| Personal a tiempo completo: |
10 |
| Personal a tiempo parcial: |
5 |
| Voluntarios asiduos: |
20 |
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Los principales objetivos de la organización:
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- To improve the quality of life for people with MS and their families. To reach out to all Portuguese speaking people affected by MS, whether living in Portugal or in another country
- To better inform people with MS and their families, alongside other MS bodies, about the disease, the best methods of dealing with it and the current treatments and therapies available
- To offer all forms of support to people with MS, including legal advice, home care support occupational therapy and leisure activities
- To install preventative health and rehabilitation facilities
- To collaborate with the health authorities in:
a. better educating general practitioners on MS
b. improving access to qualified MS specialists
c. producing/supporting a national monitoring system to ensure that all MS centres work under the same framework
- To support research into treatment improvement
- To ensure that the MS community is informed of new medicines provided that they are considered safe and effective
- To offer training for both professional and voluntary caregivers
- To influence and increase MS awareness among the general public
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