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Rumania - Miembro Asociado
Multiple Sclerosis Society of Romania
| Nombre de la asociación: |
Societatea de Scleroză Multiplă din România |
| Acrónimo: |
SSMR |
| Dirección: |
Str Buzăului nr. 2/B
CP11, OP3
410249
Oradea
Bihor |
| Tel: |
(40) 259 417136 |
| Fax: |
(40) 359 192110 |
| Email: |
office@smromania.ro |
| Página web: |
click here |
| Presidente: |
Aurora Borsan |
| Director Ejecutivo: |
Claudia Torje |
| Idioma: |
Romanian |
| Representante en el Comité Internacional de Personas con EM: |
Adrian Feurdean |
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Contactos
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| Recaudación de fondos: |
Laurenţiu Lazăr |
| Comunicaciones: |
Claudia Torje |
| Servicios: |
Claudia Torje |
| Información: |
Claudia Torje |
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Datos
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| Número aproximado de personas que padecen EM: |
20,000 |
| Número de personas con EM de las que tiene conocimiento la asociación: |
2,700 |
| Personal a tiempo completo: |
3 |
| Personal a tiempo parcial: |
1 |
| Voluntarios asiduos: |
4 |
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Los principales objetivos de la organización:
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- To help people with multiple sclerosis and their families
- To strengthen existing regional MS foundations and, through its development plan, help to establish new foundations in regions not yet covered
- To provide information and, where possible, social and medical support through regional groups
With its newly formed medical advisory board, SSMR seeks to inform and advise national and local health bodies to ensure that the state provides the most effective treatment, therapy and care possible for people with MS.
The MS Society commits to keeping families together, where possible, by supporting the person with MS so that they can continue to live as independently as possible in their community.
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