| Nom de la Société: |
Sociedade Portuguesa de Esclerose Múltipla |
| Acronyme: |
SPEM |
| Adresse: |
Rua Zofimo Pedroso 66
1950-291
Lisboa |
| Tél: |
(351) 21 865 04 80 |
| Fax: |
(351) 21 865 04 89 |
| Email: |
spem@spem.org |
| Website: |
click here |
| Etabli: |
8 December 1984 |
| Président: |
Manuela Martins |
| Président directeur: |
Jorge da Silva |
| Langue: |
Portuguese |
Représentants le Comité International des personnes
atteintes par la SEP: |
Bebiana Maria Sequeira |
Chaire du Bureau national Médical
Consultatif: |
Dr António Magalhaes |
| Country Représentants le Bureau Médical et scientifique International: |
Dr Edmeia Monteiro
Dr Livia de Sousa |
| |
Contacts
|
| |
| Fonds de bienfaisance: |
Manuel Gonçalves |
| Communications: |
Madalena d'Almeida |
| Services: |
Maria José Protásio |
| Informations: |
António Amaro de Matos |
| |
Données
|
| |
| Nombre total de membres: |
1,400 |
| Quantité estimée de personnes atteintes par la SEP: |
5,000 |
| Nombres de personnes atteintes par la SEP connues de la société: |
920 |
| Personnel à temps complet: |
10 |
| Personnel à temps partiel: |
5 |
| Bénévoles réguliers : |
20 |
| |
Actions et objectifs de la Société:
|
| |
- To improve the quality of life for people with MS and their families. To reach out to all Portuguese speaking people affected by MS, whether living in Portugal or in another country
- To better inform people with MS and their families, alongside other MS bodies, about the disease, the best methods of dealing with it and the current treatments and therapies available
- To offer all forms of support to people with MS, including legal advice, home care support occupational therapy and leisure activities
- To install preventative health and rehabilitation facilities
- To collaborate with the health authorities in:
a. better educating general practitioners on MS
b. improving access to qualified MS specialists
c. producing/supporting a national monitoring system to ensure that all MS centres work under the same framework
- To support research into treatment improvement
- To ensure that the MS community is informed of new medicines provided that they are considered safe and effective
- To offer training for both professional and voluntary caregivers
- To influence and increase MS awareness among the general public
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