| Nom de la Société: |
Asociación Española de Esclerosis Múltiple |
| Acronyme: |
AEDEM |
| Adresse: |
Calle Sangenjo, 36
28034
Madrid
|
| Tél: |
(34) 91 448 1305 |
| Fax: |
(34) 91 448 1305 |
| Email: |
aedem@aedem.org |
| Website: |
click here |
| Etabli: |
26 August 1984 |
| Président: |
Águeda Alonso Sánchez |
| Président directeur: |
Francisco Delgado |
| Langue: |
Spanish |
Chaire du Bureau national Médical
Consultatif: |
Dr Guillermo Izquierdo |
| Country Représentants le Bureau Médical et scientifique International: |
Dr Guillermo Izquierdo |
| |
Contacts
|
| |
| Fonds de bienfaisance: |
Agueda Alonso Sanchez |
| Communications: |
Agueda Alonso Sanchez |
| Informations: |
Cristina Gómez |
| |
Données
|
| |
| Nombre total de membres: |
9,000 |
| Quantité estimée de personnes atteintes par la SEP: |
45,000 |
| Nombres de personnes atteintes par la SEP connues de la société: |
7,000 |
| Personnel à temps complet: |
6 |
| Personnel à temps partiel: |
39 |
| Bénévoles réguliers : |
150 |
| |
Actions et objectifs de la Société:
|
| |
- Help all those affected by MS and similar diseases through strengthening autonomous, regional and local associations and coordinating the work carried out.
- Raise public and governmental awareness of MS and the specific needs of those affected.
- Provide information about the disease to patients and their families to improve their knowledge of the symptoms and possible treatments and the possible help and services available to them.
- Promote and facilitate the creation of rehabilitation centres, providing physiotherapy, speech therapy, psychology and occupational therapy, to improve the quality of life for those affected and their families.
- Instigate support systems to aid social integration for members.
- Promote ‘MS Days’ to inform and advise those affected and to make the respective authorities and society in general aware of the problems faced by those with MS.
- Promote training courses for MS professionals.
- Improve the welfare of people with MS and quantity of resources available for people with MS.
|
| |
