Avec l'appréciation spéciale à:

Interviewés

Michael Barnes Professor of Neurological Rehabilitation, University of Newcastle upon Tyne, UK
Kathryn Brennan Member National Programmes Advisory Council, National MS Society, USA
Sandy Burnfield Board Member UK MS Trust, UK
Sanjay Chadha Board Member UK MS Society, UK
Peggy Crawford Clinical Psychologist, Mellen Center for Multiple Sclerosis, USA
Jeremy Hobart Neurological Outcome Measures Unit, Institute of Neurology, UK
Vanessa Hodges Member National Programmes Advisory Council, National MS Society, USA
Ludwig Kappos University Hospital, Basel & Medical Director Swiss MS Society,Switzerland
Peter Kaskel University of Ulm, Germany
Susan Kushner Associate Professor of Physical Therapy, Slippery Rock University,USA
Dawn Langdon Clinical Neuropsychologist andSenior Lecturer, University of
London, UK

Oversight Group

Mike O'Donovan, (Chair) Chief Executive, UK MS Society
Eva Havrdová Chairman, Czech MS Society Medical Advisory Board
Hans-Peter Hartung Department of Neurology, Heinrich-Heine-University, Germany
Tom Houle Member National Advisory Board of Persons with MS. National MS Society, USA
Nicholas G. LaRocca Director Health Care Delivery and Policy Research, National MS Society, USA
Nancy Law Vice President, Client Programmes Department, National MS Society, USA
Elizabeth McDonald Medical Director, MS Society of Australia
Xavier Montalbán Director, Unit of Clinical Neuroimmunology, Hospital Universitari Vall d'Hebron, Spain
Christine Purdy Chief Executive, Multiple Sclerosis International Federation
Mateja de Reya Chief Executive, Slovenian MS Society
Peter Rieckmann Head of Clinical Research Unit for MS and Neuroimmunology, University of Würzburg, Germany
Paul Rompani Deputy Chief Executive, Multiple Sclerosis International Federation
Alan Thompson Medical Director, Neurorehabilitation Unit, Clinical Director & Director of Research and Development at the Institute of Neurology, UK
Susan Tilley Chair, Multiple Sclerosis International Federation Persons with MS International Committee

Work Group

Mike Dugan Chief Executive, National MS Society, USA
Nicholas G. LaRocca Director Health Care Delivery and Policy Research, National MS Society, USA
Nancy Law Vice President, Client Programmes Dept. National MS Society, USA
Christine Purdy Chief Executive, Multiple Sclerosis International Federation
Paul Rompani Deputy Chief Executive, Multiple Sclerosis International Federation
Susan Tilley Chair, MSIF Persons with MS International Committee

Others

Megan Burgess MS Nurse Consultant, Hope Hospital, UK
Caron Caldwell Acting MS Nurse Fund Programme Manager, UK MS Society , UK
Pedro Carrascal Chief Executive, Spanish MS Federation, Spain
Francisco Delgado Chief Executive, Spanish MS Society, Spain
Peter Flachenecker Chairman Neurological Rehabilitation Center Quellenhof, Germany
Marieluise Gilch Chief Executive, Bavaria Chapter, German MS Society, Germany
Cristina Gómez Ortiz Board Member Spanish MS Society, Spain
Maria Jose Flores Spanish MS Society, Spain
Natasa Koudouni Aerobic Trainer, Greek MS Society, Greece
Graham Love Chief Executive, MS Society of Ireland, Ireland
Kostas Michalakis Chief Executive, Greek MS Society, Greece
Allen O’Connor Chairman, MS Society of Ireland, Ireland
Izabella Odrobinska Chief Executive, Polish MS Society, Poland
Anastasios Orologas President, Greek MS Society, Greece
Mahi Orologas Greek MS Society, Greece
Maria Pilar Resta Spanish MS Society, Spain
Dorothea Pitschnau-Michel Chief Executive, German MS Society, Germany
Alun White Board Member UK MS Society, UK
Christiane Zahn Bavaria Chapter, German MS Society, Germany

Publié par:

Multiple Sclerosis International Federation
ISBN 0-9550139-0-9

Préparé par:

Michael Trisolini, Ph.D., M.B.A.
Joshua Wiener, Ph.D.
RTI International, Waltham, Massachusetts & Washington, U.S.A.
Deborah Miller, Ph.D. Cleveland Clinic Foundation, Cleveland, Ohio, U.S.A.

RTI International est une société de recherche indépendante à but non lucratif qui se consacre à la recherche et au développement de moyens pour l’amélioration de la condition humaine. Avec plus de 2 500 collaborateurs, RTI propose des outils de recherche et des moyens techniques innovants aux gouvernements et sociétés du monde entier dans les domaines de la santé et de la pharmacie, avec la mise à disposition de technologies de pointe, d’enquêtes et de statistiques, de programmes d’éducation et de formation, de développement économique et social et d’environnement. Pour plus d’informations, visiter le site www.rti.org.

Les photos

Les photos de couverture sont tirées du livre d’Amelia Davis « My Story : A Photographic Essay On Life With Multiple Sclerosis » (Copyright Amelia Davis ©2002) qui peut être commandé sur www.ameliadavisphotography.com or demosmedpub.com