This study from the UK looked at a novel internet-based method of capturing outcomes in 81 people with MS who were having EDSS assessments as part of clinical trials. EDSS is a physician-based assessment, while the internet-based EDSS can capture the information remotely. The people with MS included in the study had both the EDSS, carried out by their treating physician, and completed the online survey. The researchers then compared the EDSS scores with those generated from the online survey using a number of statistical parameters. Overall they found that the internet-based EDSS showed good correlation with the physician-measured assessment. The correlation was better in people with MS with higher scores, indicating that the internet-based assessment may be useful in patients with a greater disability. More than 90% of people with MS scored higher in the bladder/bowel functional system than the physician scores. Patient satisfaction was overall high for the internet-based assessment. This demonstrates the potential utility of an internet-based assessment tool for the long-term monitoring on MS particularly in people who find it difficult to travel to see physicians.
Authors: Leddy S, Hadavi S
Source: J Neurol Neurosurg Psychiatry. 2013 Nov;84(11):e2. doi: 10.1136/jnnp-2013-306573.9.
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