A discussion from the Alliance’s digital tools workshop

Last updated: 9th July 2025

Wednesday, 23 July 2025 at 11:00 am EDT, 4:00 pm BST, 5:00 pm CEST

Digital tools—such as electronic health records, telemedicine, digital biomarkers, wearable devices, and big data analytics—are rapidly evolving, with the potential to improve care and speed life-changing solutions for those living with progressive MS.

These topics were recently discussed at the Alliance’s Digital Tools Workshop, which brought together researchers and experts from around the globe to discuss:

  • The use of digital tools in research and practice in MS: Existing state, challenges and opportunities
  • Validation of digital tools as outcome measures
  • Perspectives of people affected by MS regarding the use of digital tools
  • Digital data privacy and security
  • …and more.

In this webcast, workshop participants and presenters will discuss insights from the meeting and how they view digital tools in the future of MS research. The webcast will be streamed on 23 July from:

The International Progressive MS Alliance Webcasts are sponsored by Sanofi and Genentech.

MSIF’s work to promote the activities of the International Progressive MS Alliance is made possible by grants from Merck, Novartis, Roche and Sanofi. 

 

July 2025 webcast - Register now to join the discussion!

Registration will ensure access to the webcast post-event if you are unable to join live.

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Webcast Panel

 

Vanessa Fanning is Chair of the International Progressive MS Alliance’s People with MS Engagement Coordination Team and Scientific Steering Committee. She was diagnosed with MS in 1996, and has served as a volunteer for MS Canada, and as a board member for the MS International Federation. In her role on the Progressive MS Alliance, Marie participates in the review of research proposals, and helped lead a team that developed the Principles of Patient Engagement in MS Research. She hopes to speed up the process of finding new MS treatments and ways to improve well-being.

 

 

 

Prof. Dr. Stefan Gold is Head of the Research Group for  Neuropsychiatry, Department of Psychiatry and Medical Department, Division of Psychosomatics at the Charité University Berlin. His research focuses on internet-based cognitive behavioral therapy (CBT) in multiple sclerosis, specifically focused on fatigue and depression.

 

 

 

Elizabeth Gromisch, PhD works at the Mandell Center for Multiple Sclerosis, Mount Sinai Rehabilitation Hospital, Trinity Health of New England, in Hartford, CT. She is an affiliated faculty member in the Departments of Rehabilitative Medicine and of Medical Sciences at the Frank H. Netter MD School of Medicine, Quinnipiac University, in North Haven, CT, as well as the Department of Neurology at University of Connecticut School of Medicine, in Farmington, CT. Dr. Gromisch earned her degree in clinical psychology (health emphasis) from the Ferkauf Graduate School of Psychology in New York City.

 

 

HOST

Jennifer Graves, MD, PhD, is a Co-Chair of the Alliance’s Digital Tools Workshop. She is Professor of Neurosciences, Vice Chair of Human Clinical Research and Division Chief of Neuroimmunology at University of California, San Diego. Her current research focuses on genetic, environmental and sex-related risk factors driving clinical outcomes in multiple sclerosis and optic neuritis. She also studies how age affects patients’ experience of multiple sclerosis. Her research includes the development of next-generation digital tools to assess neurological patients, leveraging sensors developed in the computer control industry as well as novel applications in mobile technology. She is a collaborator in several national and international research efforts in multiple sclerosis and participates in multi-center clinical trials.

 

About the International Progressive MS Alliance

The International Progressive MS Alliance is a first-of-its-kind global research network aimed at accelerating the development of new, effective treatments for progressive MS. We are rallying the world through an unprecedented collaboration of MS organisations, researchers, healthcare professionals, pharmaceutical companies, foundations, donors and people affected by MS. Our promise is more than hope; it is progress.

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