About the webinar
Data has the power to persuade hearts and minds to change lives for the better. But what do you do if you don’t have a MS registry or all the data you need? Find out how two MS organisations tackled this issue and the lessons they learnt along the way, in the ‘Atlas of MS – the power of data’ webinar.
The webinar will take place on Tuesday 20 September 2022 at 13:30-15:00 (BST – London time).
During this 90-minute interactive session, we will hear some exciting examples from India and Spain who, inspired by the Atlas of MS, created new initiatives to show the power of data and why it is essential to improve the lives of people living with, and affected by MS.
The event is free and will be live-interpreted in English, Arabic and Spanish. It is open to all staff and volunteers from across the MS movement who are interested in the power of data to tell stories, engage key stakeholders/decision makers and advocate for change.
Register using the form below to secure your place and to make sure you receive the recording after the event.
About the presentations
The webinar will include examples from two MS organisations, the Multiple Sclerosis Society of India (MSSI) and Esclerosis Múltiple España (EME). Find out more about each of their talks below.
Sandeep Chitins, Honorary National Secretary, MSSI and Javed Hasan, National Project Director, MSSI, will share an update of their ‘Numbers Matter Campaign’ which was to highlight to the government that the absence of data causes barriers in access to affordable treatment, policy formation and research for MS and the impact on the day-today lives of people with MS. It included an online petition to a crowd-sourced MS prevalence map for India. They will share their successes and learnings from the campaign.
Pedro Carrascal, CEO of EME, the Biscay MS Society and the MS Basque Foundation, will share an exciting initiative ‘EMDATA’, a centralised repository in the cloud which brings all the existing information on MS in Spain together in one place and presents it dynamically. In addition, it will be the space where EME will launch its surveys, investigations, and data collection in a centralized manner. In short, EMDATA aims to collect, store, cross-reference and display data that contributes to creating a living picture of the reality of people with MS in Spain. They will explain why they set this up now and the benefits that it is already showing.
We think these pioneering examples will inspire you to see what you could do in your own country to improve the data on MS. Join us live for the opportunity to ask questions of our esteemed speakers.