Tag: people affected by MS

Members of the PROMS Initiative publish their perspective

"Siempre tenemos la esperanza de que las cosas mejoren en el futuro y de que, algún día, consigamos encontrar una cura definitiva para la esclerosis múltiple. Hasta entonces, tenemos que seguir las investigaciones más recientes".

'To even get my diagnosis I had to borrow money from others.'

'I keep worrying: What if I was unable to get my treatment for a month or so? What will be the consequences?'

'I felt down, empty and lonely when I couldn’t go to the school.'

‘I don't count how many times I fall. I count how many times I stand up.’

‘She went to sleep and didn’t wake up for two months’

‘They said ‘if a car is broken, it is useless to repair a tyre when the major problem is the engine’

‘I actually want to be in a more corporate kind of role in which you would be married to your job a bit more. That excites me.’

'I was left in a situation of being newly diagnosed, scared and with the prospect that I didn't have health coverage.'

Find out more about the Global PROMS Initiative - Patient Reported Outcomes for MS