MS can cause changes that affect a person’s usual ways of expressing sexuality. Everyone with MS retains the capacity to give and receive love and pleasure, although creative problem-solving is sometimes necessary for some people in order to find avenues for intimate expression.
Understanding how MS symptoms might affect intimacy and sexuality represents a crucial step towards overcoming obstacles effectively. Whether one is newly diagnosed, physically disabled, young, mature, single or in a long-term relationship, MS does not diminish the universal human need to give and receive love and intimate pleasure.
The sexual partnership can be challenged by changes within a relationship, such as one person becoming the other’s caregiver. Similarly, changes in employment status or role performance within the household are often associated with emotional adjustments that can temporarily interfere with sexual expression. The strain of coping with MS may challenge a couple’s efforts to communicate openly about their respective experiences and their changing needs for sexual expression and fulfilment.
Watch the ‘Sex life and MS’ animation which looks at a few of the challenges that some people with MS may experience.
This animation was originally created by the Italian MS Society. We worked with some of our member organisations in Australia, Denmark, Italy, India, Lebanon, Poland, Spain and the United Kingdom to adapt and translate the animation so it can be shared globally.
Sexual changes in MS: frequency and characteristics
Studies have been completed on the prevalence of sexual and relationship problems in MS in a number of countries. Although normal sexual function changes throughout the lifespan, MS can affect an individual’s sexual experience in a variety of ways.
Studies on the prevalence of sexual problems in MS indicate that 40-80 per cent of women and 50-90 per cent of men have sexual complaints or concerns. The most frequently reported changes in men are a diminished capacity to attain or maintain an erection, and difficulty having an orgasm. The most frequent changes that women report are a partial or total loss of libido (sexual desire), vaginal dryness/irritation, diminished orgasm, and uncomfortable sensory changes in the genitals.
Sexual changes in MS can best be characterised as primary, secondary or tertiary.
Primary sexual dysfunction stems from changes to the nervous system that directly impair the sexual response and/or sexual feelings. Primary disturbances can include partial or total loss of libido, unpleasant or decreased sensations in the genitals, decreased vaginal lubrication or erectile capacity, and decreased frequency and/or intensity of orgasm.
Secondary sexual dysfunction refers to MS-related physical changes that indirectly affect the sexual response. Bladder and/or bowel dysfunction, fatigue, spasticity, muscle weakness, problems with attention and concentration, hand tremors, and non-genital changes in sensation are among the most common MS symptoms that can cause secondary sexual dysfunction.
Tertiary sexual dysfunction results from psychosocial and cultural issues that can interfere with sexual feelings and sexual response. Depression, performance anxiety, changes in family roles, lowered self-esteem, body image concerns, loss of confidence, and internalised beliefs and expectations about what defines a “sexual man” or a “sexual woman” in the context of having a disability, can all be expressions of, or contribute to, tertiary sexual dysfunction.
The central nervous system and sexual response
Sexual response is mediated by the central nervous system – the brain and spinal cord. There is no single sexual centre in the central nervous system. Many different areas of the brain are involved in various aspects of sexual functioning, including sex drive, perception of sexual stimuli and pleasure, movement, sensation, cognition and attention.
Sexual messages are communicated between various sections of the brain, thoracic (upper), lumbar (middle) and sacral (lower) spinal cord and genitals throughout the sexual response cycle. Since MS can result in randomly distributed lesions along many of these myelinated pathways, it is not surprising that changes in sexual function are often reported.
The good news is that there are likely to be neurologic pathways that mediate aspects of sexual feelings and response that are widely distributed and therefore unaffected by MS lesions.