'We always have hope that things will be better in the future and that one day we will manage to find a final cure for MS. Until that time, we have to follow the latest research.'
'To even get my diagnosis I had to borrow money from others.'
'I keep worrying: What if I was unable to get my treatment for a month or so? What will be the consequences?'
'I felt down, empty and lonely when I couldn’t go to the school.'
‘I don't count how many times I fall. I count how many times I stand up.’
‘She went to sleep and didn’t wake up for two months’
‘They said ‘if a car is broken, it is useless to repair a tyre when the major problem is the engine’
‘I actually want to be in a more corporate kind of role in which you would be married to your job a bit more. That excites me.’
'I was left in a situation of being newly diagnosed, scared and with the prospect that I didn't have health coverage.'
Find out more about the Global PROMS Initiative - Patient Reported Outcomes for MS