Tag: people affected by MS
Adriana, Argentina
'I was left in a situation of being newly diagnosed, scared and with the prospect that I didn't have health coverage.'
Imane, Morocco
'I keep worrying: What if I was unable to get my treatment for a month or so? What will be the consequences?'
Sanae, Morocco
'To even get my diagnosis I had to borrow money from others.'
Tarrbinder, Malaysia
‘I don't count how many times I fall. I count how many times I stand up.’
Hafizuddin, Malaysia
'I felt down, empty and lonely when I couldn’t go to the school.'
Sharifah, Malaysia
‘I actually want to be in a more corporate kind of role in which you would be married to your job a bit more. That excites me.’
Oumaima, Morocco
'We always have hope that things will be better in the future and that one day we will manage to find a final cure for MS. Until that time, we have to follow the latest research.'
Norzey, Malaysia
‘She went to sleep and didn’t wake up for two months’
Shahdar, Malaysia
‘They said ‘if a car is broken, it is useless to repair a tyre when the major problem is the engine’
Fixing an imperfect system through the voices of those with lived experience
Find out more about the Global PROMS Initiative - Patient Reported Outcomes for MS