A guide for parents of young adults with MS
About the resource
This publication is structured in ten chapters, each of which is dedicated to one of the typical fears of a parent following a diagnosis of MS for their child. These fears are implicit questions to which we have tried to answer: each chapter is therefore divided into a general part, describing the situation and the feelings that come into play (What happens, What it feels like), and some suggestions on what behaviours and attitudes are to be preferred (What can be done).
Parents are inclined to wonder with anguish about the future of their son or daughter. Will he be able to manage on his own? Will he be able to keep his job? Will he build a stable relationship with someone you love him? Will she have children? How will the disease evolve? Will he have to use a cane or a wheelchair? And, inevitably, we ask ourselves: “Why them? Why us?”
It is very difficult to share with others the emotions, fears, anxieties that can be experienced when your son or daughter is diagnosed with MS. There are many doubts, questions and concerns, and it is not always possible to placate them or obtain satisfactory answers. MS impacts not only those who have it, but also on parents and the family as a whole.
Copyright AISM – Associazione Italiana Sclerosi Multipla (Italian MS Society)
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We're very grateful to the Associazione Italiana Sclerosi Multipla for uploading this resource. If you have any questions or feedback on it, please contact the Associazione Italiana Sclerosi Multipla.