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Today, in many countries, the term carer or caregiver has a broad meaning. Voluntary carers can be family members, friends or others with diverse roles that vary depending on the needs of the person to whom they provide care. In some countries, such as the United States, Canada, the United Kingdom and others, the activities of carer groups often include lobbying and advocacy.

These movements have certainly brought the needs of carers to the forefront, providing a voice to many family members and others who are dedicated to providing quality care to their loved ones.

This issue of MS In Focus discusses the effects of caregiving, the needs of carers and practical information on managing activities related to caregiving. Our hope is that it provides information that is relevant, practical and hopeful for carers of people with MS, healthcare professionals and people with MS themselves, in every country and culture affected by this disease and the caregiving issues that accompany it.


  • Introduction to caregiving and MS
  • The caring balance
  • Caring skills and tools
  • Economic and social impact of family caregivers in MS
  • We all have our limits: recognising and managing abuse in the caregiving relationship
  • A European initiative: professional family care of people with MS – the Qualified Care project
  • MS Carers Network Wales: reaching out to isolated carers
  • Interview with a family caregiver
  • Results of the online caregiving survey
  • MSIF’s Evelyn Nicholson Award for International Caregiver


Published: 2007

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