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Written resources

A guide for support partners

Written resources
Providing loving care can be deeply satisfying but also physically and emotionally exhausting, especially for the primary support partner. Because…
ORGANISATION:
National MS Society USA
Download Languages available
English

Kids Get MS Too: A guide for parents of a child or teen with MS

Written resources
MS is most often diagnosed between the ages of 20 and 50, but, it is also diagnosed in children and…
ORGANISATION:
MS Society of Canada, National MS Society USA
Download Languages available
English, Spanish, French

Childhood MS: a guide for parents

Written resources
MS is usually thought of as an adult condition, but children and teenagers can also develop it. If your child…
ORGANISATION:
MSIF
Download Languages available
English, Arabic, Dutch, Polish, Romanian, Spanish, Portuguese

Plaintalk: A Booklet about MS for Families

Written resources
MS affects not only the individuals with MS, but also their family members and friends. Plaintalk explores some of the…
ORGANISATION:
National MS Society USA
Download Languages available
English

For family and friends – when someone close to you has MS

Written resources
This booklet is directed to family and friends of people with MS. It covers common questions and worries, what to…
ORGANISATION:
UK MS Society
Download Languages available
English

MS in your life – a guide for young carers

Written resources
This guide is written to explain to young people about living with a person with MS. If you have a…
ORGANISATION:
UK MS Society
Download Languages available
English

Supporting someone with MS – A guide for friends and family

Written resources
This comprehensive guide is a 56-page booklet full of tips and advice for carers of people with MS. It’s based…
ORGANISATION:
UK MS Society
Download Languages available
English

¿Qué le pasa a mamá?

Written resources
This book tells the story of nine year old Julia and her family. It describes family life when a parent…
ORGANISATION:
Asociación Española de Esclerosis Múltiple
Download Languages available
Spanish

¿Qué le pasa a papá?

Written resources
This book tells the story of ten-year-old Leanor and her family. The story describes Leanor’s father’s relapse and explains possible…
ORGANISATION:
Asociación Española de Esclerosis Múltiple
Download Languages available
Spanish

Becoming parents when you have MS

Written resources
MS is often diagnosed at a time when some people might be considering starting a family. This brochure lists a…
ORGANISATION:
France Sclerose En Plaques (FranceSEP)
Download Languages available
French

Caring for Children and Adolescents with Multiple Sclerosis

Written resources
In recent years, the number of children and adolescents being diagnosed with MS has increasingly been recognised. A diagnosis of MS at…
ORGANISATION:
European Multiple Sclerosis Platform
Download Languages available
English

Keep S’Myelin: An activity book about MS for kids

Written resources
The Keep S’myelin Activity Book is a 28-page colorful, engaging, informative, and reassuring interactive publication to help children and their…
ORGANISATION:
MS Society of Canada, National MS Society USA
Download Languages available
English, Spanish, English, Polish, French

Keep S’Myelin: Schools

Written resources
School is the backdrop for a very significant part of your child’s life. Family and home issues are brought to…
ORGANISATION:
National MS Society USA
Download Languages available
English

Keep S’Myelin: Feelings & MS

Written resources
Everyone in the family is likely to have feelings about MS—the most common being anxiety, anger, sadness and guilt. One of…
ORGANISATION:
National MS Society USA
Download Languages available
English

Someone you know has MS: A book for families

Written resources
A story about Michael and his family explains MS and explores children’s fears and concerns. For children, 5-12. Note to parents:…
ORGANISATION:
National MS Society USA
Download Languages available
English, Spanish

MS: Children, teenagers and family

Written resources
This guide is aimed at people with MS, who have children or teenagers. It explores what worries them, what their…
ORGANISATION:
Esclerosis Múltiple España
Download Languages available
Spanish

Tell me about MS: For kids

Written resources
One of the most important challenges for parents with MS is helping their children understand the disease and its variable…
ORGANISATION:
Esclerosis Múltiple España
Download Languages available
Spanish

Tell me about MS: For parents

Written resources
One of the most important challenges for parents with MS is helping their children understand the disease and its variable…
ORGANISATION:
Esclerosis Múltiple España
Download Languages available
Spanish

MS in children & teenagers

Written resources
This booklet has been put together from the testimonies of children, teenagers and their parents. The booklet aims to explain…
ORGANISATION:
France Sclerose En Plaques (FranceSEP)
Download Languages available
French

Is MS in children the same as MS in adults?

Written resources
MS is most common in adults around the age of 20-40, however the number of children being diagnosed with MS…
ORGANISATION:
MS Félag Íslands
Download Languages available
Icelandic

When mum or dad has MS

Written resources
This booklet explains MS in a way that children can understand and is written by psychologists that are experienced in…
ORGANISATION:
Scleroseforeningen
Download Languages available
Danish

Sometimes I drop the salad bowl

Written resources
This book “Sometimes I lose the salad bowl” depicts just some of the challenges that multiple sclerosis brings with it…
ORGANISATION:
Scleroseforeningen
Download Languages available
Danish

I Introduce you to MS (for children ages 6-11)

Written resources
‘I introduce you to MS’ is a tool available to parents and children. It aims to open a peaceful dialogue…
ORGANISATION:
Associazione Italiana Sclerosi Multipla
Download Languages available
Italian

Pediatric MS: A guide for parents

Written resources
This publication aimed at parents who have a child or adolescent diagnosed with MS. It is based on the stories…
ORGANISATION:
Associazione Italiana Sclerosi Multipla
Download Languages available
Italian

In our house (Explaining MS to ages 3-6)

Written resources
Often the parent tends to avoid difficult conversations with younger children, out of the desire to protect them: this is…
ORGANISATION:
Associazione Italiana Sclerosi Multipla
Download Languages available
Italian

A Guide for parents with MS 

Written resources
The publication aims to support communication and dialogue in the family and make it possible to address the emotions and…
ORGANISATION:
Associazione Italiana Sclerosi Multipla
Download Languages available
Italian

 A guide for parents of young adults with MS

Written resources
This publication is structured in ten chapters, each of which is dedicated to one of the typical fears of a…
ORGANISATION:
Associazione Italiana Sclerosi Multipla
Download Languages available
Italian

My Mommy has MS

Written resources
This illustrated booklet is written from the perspective of a young child who’s parent has MS. The booklet explains everything…
ORGANISATION:
MS Society of Canada
Download Languages available
English, French

Special Focus on the Family

Written resources
Learning to cope with a chronic illness such as multiple sclerosis is not only a challenge for the person who…
ORGANISATION:
MSIF
Download Languages available
English, Chinese, German, Italian, Spanish

Pediatric MS and other demyelinating disorders in childhood

Written resources
Current understanding, diagnosis and management The International Pediatric MS Study Group have written a series of articles, highlighting the advances,…
ORGANISATION:
MSIF
Download Languages available
English, Arabic, Polish, Spanish, Italian

Activities for children during the COVID-19 crisis

Written resources
Many people with MS have children and are not used to entertaining them all day, so it can be challenging…
ORGANISATION:
Scleroseforeningen
Download Languages available
Danish

Videos, webinars and podcasts

Ask about MS: Communicating about MS

Videos, webinars and podcasts
How will others react to finding out about my MS? How do I talk to my doctor about my MS?…
ORGANISATION:
Polskie Towarzystwo Stwardnienia Rozsianego
Languages available
Polish

Connecting with family and friends

Videos, webinars and podcasts
Having a chronic illness, like MS, can leave you feeling lonely and isolated. This animation by MS Australia and MS…
ORGANISATION:
MS Australia
Languages available
English, Chinese, Greek, Indonesian, Slovak, Spanish, Swedish, Italian

MS Mythbusters: ‘I have MS therefore my kid will get MS’

Videos, webinars and podcasts
Learn more about a common misconception in MS from this short video. Although MS does have a genetic component, that…
ORGANISATION:
MS Australia
Languages available
English

Kids Get MS, too

Videos, webinars and podcasts
Discover what it’s like to navigate a diagnosis of pediatric MS as you explore stories of children, teens, parents, and…
ORGANISATION:
National MS Society USA
Languages available
English, German, French, Italian

MS explained to children: What is multiple sclerosis?

Videos, webinars and podcasts
Multiple sclerosis (MS) is a complex disease, that may be difficult to explain to your children. In this video MS…
ORGANISATION:
Swiss Multiple Sclerosis Society
Languages available
French, Italian, German

MS Explained to children: Symptoms of MS

Videos, webinars and podcasts
It is not easy for children and adolescents when a parent is affected by multiple sclerosis (MS). It can be…
ORGANISATION:
Swiss Multiple Sclerosis Society
Languages available
French, Italian, German

MS Explained to children: When a children help take care of their parent

Videos, webinars and podcasts
If a parent is diagnosed with multiple sclerosis (MS), the children are emotionally involved. Within the affected families, children very…
ORGANISATION:
Swiss Multiple Sclerosis Society
Languages available
French, Italian, German

MS Explained to children: Mixed feelings

Videos, webinars and podcasts
When one parent has multiple sclerosis (MS), it is not always easy for children and teens to manage. MS is…
ORGANISATION:
Swiss Multiple Sclerosis Society
Languages available
French, Italian, German

Graphics

Telling other young people about MS: I want to be understood, not pitied.

Graphics
MS can give rise to false myths and prejudices, as it is difficult to understand and not always visible. But…
ORGANISATION:
Associazione Italiana Sclerosi Multipla
Languages available
Italian, Polish

Telling other young people about MS: I want to live my life too

Graphics
MS can give rise to false myths and prejudices, as it is difficult to understand and not always visible. But…
ORGANISATION:
Associazione Italiana Sclerosi Multipla
Languages available
Italian, Polish

Telling other young people about MS: I can manage my MS troubles

Graphics
MS can give rise to false myths and prejudices, as it is difficult to understand and not always visible. But…
ORGANISATION:
Associazione Italiana Sclerosi Multipla
Languages available
Italian, Polish

Telling other young people about MS: MS is not contagious

Graphics
MS can give rise to false myths and prejudices, as it is difficult to understand and not always visible. But…
ORGANISATION:
Associazione Italiana Sclerosi Multipla
Languages available
Italian, Polish

Explaining your child’s MS (Comic)

Graphics
MS is usually thought of as an adult condition, but children and teenagers can also develop it. This comic explains…
ORGANISATION:
Polskie Towarzystwo Stwardnienia Rozsianego
Download Languages available
Polish

Telling other young people about MS: I didn’t ask for MS

Graphics
MS can give rise to false myths and prejudices, as it is difficult to understand and not always visible. But…
ORGANISATION:
Associazione Italiana Sclerosi Multipla
Languages available
Italian, Polish

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