To enhance the lives of people with MS and their families (often the principal caregivers), the MS International Federation published this report on the principles underlying improvements to quality of life.
The principles were designed to guide the development and evaluation of services and programmes that are provided by governments, health and service providers, employers and other organisations for people with MS. They are also designed for MS organisations and individuals with MS and their families to use to advocate for improvements to services. As relevant today as they were when published in 2006, the principles underpin many of our members’ activities. The principles are:
- Independence and empowerment
People with MS are empowered as full participants in their communities and in decision-making about the management and treatment of the disease.
- Medical care
People with MS have access to medical care, treatments and therapies appropriate to their needs.
- Continuing (long-term or social) care
People with MS have access to a wide range of age-appropriate care services that enable them to function as independently as possible.
- Health promotion and disease prevention
People with MS have the information and services they need to maintain positive health practices and a healthy lifestyle.
- Support for family members
Family members and caregivers receive information and support to mitigate the effects of MS.
People with MS have access to their communities through accessible public transportation and assistive technology for personal automobiles.
- Employment and volunteer activities
Support systems and services are available to enable people with MS to continue employment as long as they are productive and desire to work.
- Disability entitlements and cash assistance
Disability entitlements and services are available to those in need, provide an adequate standard of living, and have flexibility to allow for the disease variability that is characteristic of multiple sclerosis.
MS does not inhibit the education of people with MS, their families or careers.
- Housing and accessibility of buildings in the community
Accessibility, both of public buildings and in the availability of accessible homes and apartments, is essential to independence for people with MS.
Download the Principles
In order to open these, you will require Acrobat Reader.
- Principles to Promote the Quality of life of People with MS – Arabic [PDF, 758KB]
- Principles to Promote the Quality of Life of People with MS – Chinese [PDF, 921 KB]
- Principles to Promote the Quality of Life of People with MS – English [PDF, 770 KB]
- Principles to Promote the Quality of Life of People with MS – French [PDF, 1049KB]
- Principles to Promote the Quality of Life of People with MS – German [PDF, 1051KB]
- Principles to Promote the Quality of Life of People with MS – Spanish [PDF, 1045KB]
The MS International Federation also published a guide to the principles: Using the quality of life principles: a programme planning workbook for MS Societies.